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World Heart Podcast

Episode 19: Understanding Heart Failure - A Patient and Physician Perspective

Conversations from the Heart: Understanding Heart Failure – A Patient and Physician Perspective

Release Date: 27 February 2026

Duration: 42:30

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Dr. Jillianne Code

Researcher and Educator, University of British Columbia
Heart Failure Survivor and Two-Time Heart Transplant Recipient

Dr. Vagner Madrini Junior

Cardiologist and Deputy Editor, Global Heart Journal
Specialist in Heart Failure, São Paulo, Brazil

Host: Pablo Perel

Senior Science Advisor, World Heart Federation

In this special episode of the Global Heart Podcast, we explore heart failure from two powerful perspectives: lived experience and clinical expertise.

Dr. Jillianne Code shares her extraordinary journey—from a traumatic and initially misdiagnosed presentation at age 28, to advanced heart failure, mechanical support, and ultimately two heart transplants. Her story highlights the emotional impact of diagnosis, the power of clear communication, and the importance of patient empowerment.

Dr. Vagner Madrini Junior explains what heart failure actually means in simple, accessible terms: when the heart is no longer functioning efficiently as a pump. He outlines common causes such as coronary artery disease and high blood pressure, the difference between congestion and low-perfusion symptoms, and why diagnosis can sometimes be challenging.

Together, they discuss:

  • Why the words “heart failure” can feel overwhelming—and how language matters

  • The importance of early recognition and structured diagnostic pathways

  • Medication titration: why more medicines often mean better protection—not worsening disease

  • The critical role of communication in improving medication adherence

  • How multidisciplinary care (including nurses and pharmacists) strengthens outcomes

  • The value of peer support and patient communities

This episode is designed especially for people living with heart failure, caregivers, and anyone seeking a clearer understanding of the condition and how to navigate conversations with healthcare teams.

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Key Takeaways

What Heart Failure Really Is

Heart failure means the heart is not pumping blood efficiently. It can involve difficulty pumping blood out (reduced ejection fraction) or difficulty filling properly (preserved ejection fraction). It is often caused by coronary artery disease or uncontrolled high blood pressure—both of which are preventable or treatable.

Symptoms Can Be Subtle

Shortness of breath, swelling, fatigue, dizziness, and difficulty concentrating may signal heart failure. Symptoms are often non-specific, which can delay diagnosis—especially in younger patients.

Diagnosis Requires Listening

There is no single symptom that confirms heart failure. Careful clinical evaluation, blood tests (such as NT-proBNP), and echocardiography are key steps in establishing a diagnosis.

Medications Protect the Heart

Heart failure treatment typically requires multiple medications. These are not a sign of worsening disease but are essential to block harmful pathways in the body. Poor medication adherence remains one of the leading causes of heart failure hospitalization—highlighting the need for clear explanation and shared decision-making.

Communication Matters

Patients should feel empowered to ask questions and prepare for appointments. Understanding why each medication is prescribed and how to manage side effects improves confidence and adherence.

You Are Not Alone

Connecting with peer support groups, patient organizations, and educational resources can reduce isolation and build resilience. Empowerment begins with information and community.

Resources & Further Reading

Stay Informed and Take Action

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  • Share this episode with patients, families, and clinicians—awareness shortens the road to diagnosis.

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